Thalassemia and Sickle Cell Society of India is a registered NGO has been working in tandem with the Daycare centre at the Rughwani Child Care Hospital, Nagpur since 2006. The aim behind setting up the organization was to improve awareness, prevention and management of both the genetic condition which are prevalent in and around Central India. Both these chronic, genetic blood disorders make the patients susceptible to infections. Thalassemia patients are require to undergo blood transfusions every few weeks, and medicines to undo the excess iron deposition due to the transfusion. Sickle cell disease patients are more likely to get anemia. They also require regular pain management and strict monitoring of their vitals.
The society helps patients access the government schemes that provide them with free transfusion and medicines as well as funding from private resources for the benefit of patients with financial challenges.
The society conducts regular awareness campaigns to educate masses about thalassemia and sickle cell disease. It also carries out many screening camps to diagnose people from vulnerable communities to screen carriers of these genetic blood disorders, and counsel them.